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How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Does Anyone Lives Near Greenville, NC??
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No I live in Cornelius NC

Understanding What Type Seizure
A MyEpilepsyTeam Member asked a question 💭

I am interested in anyone possibly knowing what type of seizure would cause what I guess is an aura. I feel really weird before it happens. My body starts tingling. I start feeling disoriented. Like I’m going to pass out. But during my last seizure I didn’t fully lose consciousness. But I was having convulsions my body was tightening. I felt out of body
I couldn’t control it. I remember bits and pieces. But was told what else occurred. There was a lot of confusion after. I couldn’t speak I was… read more

A MyEpilepsyTeam Member

Thank you all for your responses. Seizures are such a wild thing because, it feels so scary, and you can’t tell what’s going on .. and then there’s the before , in it and ending phase
I am like 3… read more

I Was Diagnosed With Epilepsy In 2021 At 55.
A MyEpilepsyTeam Member asked a question 💭

I have had so many tests with no real answers. The docs just want to keep testing on me. Now they are talking about doing test with Phase 2 electrodes so they can find the source and dig that part out. I am having alot of stress about that. I am not confident with them. They are Stanford docs so they at the top of their field, I guess. Not sure I want to have my brain touched electrodes and really not sure about digging out parts. I have been on 5 different AEDs. Stopped the Gran Mals but having… read more

A MyEpilepsyTeam Member

Shoot i can barely remember anything anymore. Hit my head so many times plus someone tried killing my ass once lol. Heads a little to strong though due to all the hits. I got that super hero skull… read more

I've Had Epilepsy Since I Was 12 Years Old. And I Still Can't Tell What My Aura Is. How Did You Guy's Figure Out What Yours Were?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I remember when I had told my doctor about having these frightening feelings I get like something bad was going to happen. My doctor had nothing to say. It was not until I changed doctors when I was… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Does Anyone Have Any Seizures That Present Similar To A Panick Attack? What About Before An Episode/after One?
A MyEpilepsyTeam Member asked a question 💭

It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...

A MyEpilepsyTeam Member

After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more

Can You Get The Chills After A Seizure?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

But still get hot though

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Can You Give Me Example Of Your Actions During Keppra Rage?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Makes me lose my temper right away and during the seizures I get very aggressive my daughter and my friend say I get really ugly and my Dr. don’t want to take me off of it