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Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

Has Anyone's Neroligest Tol You That Low Potassium Was The Cause Of A Grand Maul?
A MyEpilepsyTeam Member asked a question 💭

My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.

A MyEpilepsyTeam Member

I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.

Does Anyone Get Scared When You Since That You Are Going To Have A Seizure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more

Driving
A MyEpilepsyTeam Member asked a question 💭

Do you guys drive?

Last of 325 replies sign up to view previous answers
A MyEpilepsyTeam Member

Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more

I Do Get Mood Changes, Are That From Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

John
Where I live they have made wearing masks up to us. We are still 6 feet away from one another. The small activities only allow 10 people in a room, still. I am sure the isolation when we could… read more

How Many Of You Have Full-time Jobs Since Your Discovering You Had Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️

How Often Do You Get MRI?
A MyEpilepsyTeam Member asked a question 💭

I was wondering ,does your neurologist do follow up MRI?if so what's the frequency?
It's been 2 years since my last MRI and I would like to know if my Archonoid cyst has grown during that time as my symptoms have progressively gotten worse and I still have concerns That it may be the cause of my symptoms amongst other reasons.

A MyEpilepsyTeam Member

MRI will depend on your Doctor. And what information he/she is looking for. A lot of times for myself , my Epileptologist would schedule me a MRI appt., followed by a EEG or the Other way around. Then… read more