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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Does Anyone Lives Near Greenville, NC??
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No I live in Cornelius NC

Does Anyone Get Scared When You Since That You Are Going To Have A Seizure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Understanding What Type Seizure
A MyEpilepsyTeam Member asked a question 💭

I am interested in anyone possibly knowing what type of seizure would cause what I guess is an aura. I feel really weird before it happens. My body starts tingling. I start feeling disoriented. Like I’m going to pass out. But during my last seizure I didn’t fully lose consciousness. But I was having convulsions my body was tightening. I felt out of body
I couldn’t control it. I remember bits and pieces. But was told what else occurred. There was a lot of confusion after. I couldn’t speak I was… read more

A MyEpilepsyTeam Member

Thank you all for your responses. Seizures are such a wild thing because, it feels so scary, and you can’t tell what’s going on .. and then there’s the before , in it and ending phase
I am like 3… read more

I've Had Epilepsy Since I Was 12 Years Old. And I Still Can't Tell What My Aura Is. How Did You Guy's Figure Out What Yours Were?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I remember when I had told my doctor about having these frightening feelings I get like something bad was going to happen. My doctor had nothing to say. It was not until I changed doctors when I was… read more

I Was Diagnosed With Epilepsy In 2021 At 55.
A MyEpilepsyTeam Member asked a question 💭

I have had so many tests with no real answers. The docs just want to keep testing on me. Now they are talking about doing test with Phase 2 electrodes so they can find the source and dig that part out. I am having alot of stress about that. I am not confident with them. They are Stanford docs so they at the top of their field, I guess. Not sure I want to have my brain touched electrodes and really not sure about digging out parts. I have been on 5 different AEDs. Stopped the Gran Mals but having… read more

A MyEpilepsyTeam Member

Shoot i can barely remember anything anymore. Hit my head so many times plus someone tried killing my ass once lol. Heads a little to strong though due to all the hits. I got that super hero skull… read more

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

Hum I wonder if addiction is on that list of side effects? Or the term dependency? I'm just curious. Seems that side effect gets missed sometimes.

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Can You Get The Chills After A Seizure?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

But still get hot though