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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Anyone Have A Goal But Can’t Complete Lack Of Motivation?
A MyEpilepsyTeam Member asked a question 💭

I’ve been trying to lose weight for 2 years now probably 3-4 honestly but losing pounds is definitely a challenge and building motivation is hard so usually I just listen to Motivational Music or something that describes a fight in a song. What do y’all do for more motivation? When you want to change.

A MyEpilepsyTeam Member

As for pulling ourselves out. Talking finding those things that make us seek. That which we want to do not just for ourselves but to help others. I find once mine was the medical field. Now… read more

What Is Anyone's Oldest Memory.
A MyEpilepsyTeam Member asked a question 💭

I was asked this tonight. Because of my birthdate. They said they remember the liberty train 🚂 and I should remember something that can mark around what my possible age could be. Ok so my oldest memory is Reagan getting shot. I think eighties. Don't really help. Everything I find says my birthday mid to early 70's

A MyEpilepsyTeam Member

My earliest memory is around the age of 3. My long term memory is still good. But once epilepsy hit me at the of 28 until now...what memory? My short term memory stinks! I can't even remember books I… read more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Has Anyone Had Good Luck With The Med XCopri ? I Would Like To Try It Now But I Believe My Insurance Will Not Cover The Med
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Headaches are a particular pain that may cause seizures. For me personally, I can get headaches due to seizures and any body pain. Again, personally, seizures act up, especially when the immune system… read more

What Do People Do For Anxiety Instead Of Meds? In Example Breathing Control.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Good way to help yourself. Like it.

Can My Son Have Seizures
A MyEpilepsyTeam Member asked a question 💭

I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me

A MyEpilepsyTeam Member

I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics

Anyone Feel Defeated When They Have To Adjust Meds And Can't Drive?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No. I did lose the ability to drive b/c of complex partial seizures (new term used today after 2017 reclassification but you know what I mean) for about 3 yrs. But I'm driving again. So keep the… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

I've Been Told That I Turn Into The Exorcist When I Have Seizures
A MyEpilepsyTeam Member asked a question 💭

I had a seizure last night, I was wondering If this happens to anyone else out there ?
I get up and start trying to climb out of windows or run around as if I'm trying to escape from someone or something..

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Have your neurologist about this? One non-professional theories that you are having is a mutation of your seizure (very common with Epilepsy) or that it or one of your… read more