When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
My Daily Medicine List
1- Dilantin ((Brand Name) caps 400mg. Per day
2- Lamictal (Brand Name) 700mg. Per day
3- Verapamil 80 mg. Per day
4- Zone gran 400mg.per day
5- Dilantin (chewable) 50mg. Per day
6- Tranxene 7.5 mg per day
7- Singular 10 mg per day (Asthma pill)
8- 2 puffs Advair 2 times per day (Asthma)
9- Sleep with BIPAP at night (improves sleep)
10- As needed to stop seizures 2mg Lorazapam
(Which is only given when I have clusters
Or a longer than normal seizure,… read more
Wolf2677, I am 59 almost 60-10/10/17. For me its been alternating medications and dosages. So far we haven't discussed surgery. Prior to my marriage seizures were about six weeks apart. I got… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Raylene, There are two-2-types of Disability that Social Security issues they are: SSI and SSDI . Be certain that you get the type of Disability that you are qualified to receive. SSI only gives… read more
Has anyone had part of their brain removed to help reduce/stop seizures? Thats what the docs recommen me try now(i already had laser ablation 2 yrs ago) Did you notice any negative changes/side effects post surgery? Good outcomes? What can i expect?
My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?
I would say when for some reason the seizures can not be controlled, no matter what they do
A year ago I was diagnosed with having seizures due to actually having one and my EEG coming back as "not too bad". I am not on any seizure medication at this time because the Neurologist said that I wasn't having them often enough to be put on any. I am concerned though because for one thing I have essential tremors and am on medicine for that. My question is how do I know if I'm having a seizure or if it's my tremors? In my opinion, my tremors are getting more frequent and worse. I tried to… read more
My seizures are complex-partial & have been seizureless for several weeks, but there are times they're nonstop day after day. & I never really know what happened until someone involved shares the… read more