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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Hi Everyone, I Have Simple Partial And Complex Partial Seizures. How Long Do Yours Typical Last?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I’ve had a few like that, but not very often. It’s when I’ve been stressed and lack of sleep happening. I try to avoid that because those will impact me for days. Hope you recover soon.

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Work ?
A MyEpilepsyTeam Member asked a question 💭

How many people still manage to still work full time and have breakthrough seizures?

Last of 154 replies sign up to view previous answers
A MyEpilepsyTeam Member

I worked 6 days a week 50/hrs wk. for 35 years. I had worked in a lumberyard. I started working outside making houseloads of lumber. Very physical labor. I moved into customer service, less physical… read more

Opinions On Fycompa?
A MyEpilepsyTeam Member asked a question 💭

My neurologist added Fycompa to my lamictal and vimpat. The lamictal and vimpat combo has worked pretty well for the most part, but I’ve had a few breakthroughs and serious insomnia. My neurologist said that lamictal can cause insomnia. I had no idea. I’ve been taking it for years, but I had also been taking medication to help me sleep up until a few months ago. I am nervous about starting Fycompa, but hopeful as well. He is going to ween me off lamictal completely over the next 6 weeks. Any… read more

A MyEpilepsyTeam Member

I’m on the max dose one Fycompa. My Dr. Told my wife and I, to pay attention to my abnormal emotions. If I start acting paranoid , suicidal thoughts, get angry easier, and ect. To let her ( my Dr. )… read more

When You Are Taking The Medication
A MyEpilepsyTeam Member asked a question 💭

When you are asked to take medication in the Morning and Night when Label on the box, would you follow it to 12 Hours between taking it, or what would you think of Various time in the Morning and A Various time at Night? If you didn't have a set 12 Hour Period would you think people would have more Seizures, Because I use to work early at 6am up to Last February, but would take my Medication at 9pm for Night , so this would be over a 12 Hour Period.

A MyEpilepsyTeam Member

Lamictal, Frisium and Epilim Chrono

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

What's A Normal Length Of Time Anyone Has Been In A Seizure And Did Any Serious Affects Come Out Of It?
A MyEpilepsyTeam Member asked a question 💭

Had seizure that involved frequent vomiting and in and out of consciousness. Was in seizure 6 hours which is the longest I've ever heard of. Luckily I was in emergency 5 of those 6 hours.

A MyEpilepsyTeam Member

yup i sure did i had 13 seizure in one day gain tons of weight at first no one couldn't figure out why end up the simalator didn't like the depression medication and neurontin also depatako got me off… read more

How Has Epilepsy Affected Your Work?
A MyEpilepsyTeam Member asked a question 💭

I'm in the proces of applying for HCPC registration and I need to declare about having epilepsy and my relatively recent seizures - will this impact me getting my registration?
Occupational health have previously advised no lone-working, which would impact my work immensely! Anyone have similar experiences?

A MyEpilepsyTeam Member

I didn't want others to know when I was diagnosed at 41
But I have had some unfortunate issues in which I didn't have any idea of what happened.... I guess I was on a vent and when I finally woke up… read more

How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Medicine Reminder?
A MyEpilepsyTeam Member asked a question 💭

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

Last of 313 replies sign up to view previous answers
A MyEpilepsyTeam Member

I now have a Nurse who is supposed to come in and set them up. I was running low on some that needed new Prescription Refills. Now I have everything I need. Am very capable of setting up meds. I have… read more