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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Embrace Or Epilert Watch? I Wanted To Know If One Is Better Than The Other. If Any Would Work For Secondary Generalized Seizures.
A MyEpilepsyTeam Member asked a question 💭

Will epilepsy watches like embrace and epilert work for secondary generalized seizures

A MyEpilepsyTeam Member

I do know someone had wristband on and they were just tying their shoelaces and the wristband told them they were having a seizure. It sounds like any wristband can't tell the difference between… read more

What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Pregancy
A MyEpilepsyTeam Member asked a question 💭

i am wanting some advice about pregancy. i have been told that i am able to have a baby by my doctor, however i have been told by others that i could not because i was taking dilantin. the doctors said it was unsafe as the baby will have birth defects i am unsure would be great if a woman can answer this!

A MyEpilepsyTeam Member

My Drs told me it would be unsafe, but that's with me, my body and my epilepsy.

Has Anyone Taken A Seizure In Front Of Their Kids Or Grandchildre? What Was Their Response?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

The first time my kids saw me have a major fit was in 1998( I'd been diagnosed in 1978 ) My boys were 13 & 11 ,my daughter was 9 .She sat on the stairs crying - the boys ran next door who called… read more

Has Anyone Had A Temporal Lobectomy? What Was Your Experience Like? How Did It Improve/ Affect Your Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I had right temporal lobe surgery back in 1988. It was one of the best things I have ever had done. It reduced my seizures from being intractable to rare. The neurologist told me that the pattern of… read more

Have You Ever Participated In A Clinical Trial?
A MyEpilepsyTeam Member asked a question 💭

I know that if I had a grand mal seizure when I was at Brigham and Women's Hospital for EEG Long Term Monitoring, then a separate recording device in the room (wireless) could have been used in the research for this potential replacement for all of the wires needing to be attached during EEG testing and especially EEG Long Term Monitoring. This was not the standard clinical trial because it is simply getting the patient in the EEG Long Term Monitoring to agree to have the wireless machine in… read more

A MyEpilepsyTeam Member

No need to apologize. I have done the same in the past too. Most of the friends on this site will not mind either.

What Scares Others About Seizures When You Know Why?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My only problem is that people place too much emphasis on my having an epileptic disorder rather than on what I know about it. For example, my mother passed away three years ago (almost to the day)… read more

How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

Does Anyone Here Have Temporal Lobe Epilepsy ?
A MyEpilepsyTeam Member asked a question 💭

i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly

A MyEpilepsyTeam Member

Francis2,
I don’t blame You!

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