I have focal impaired awareness seizures, focus mainly (L) side & sometimes (R), early adult onset. They're not completely controlled by medications, so I've been on many meds throughout the years. Recently, I was diagnosed with hyponatremia. Sodium level 132 a year ago, 127 mid March 2023, 126 a week later. My endocrinologist has me on a restricted fluid intake, which is difficult to do with daily meds, vits, meals, exercise, thirst. Seizure meds I'm currently on are Oxcarbazepine (generic Tril… read more

Those with epilepsy that had children what was your experience like? Did you have to be off your meds? Was it scary? I know I still have lots of time to worry and decide if I even want a family and Ik I can have the conversation with my doctor when the time comes but share your stories

I've been on it for years and my seizures keep getting worse. Now I'm having multiple forms of seizures instead of just tonic clinic like I had originally. And Dr keeps upping my dosage instead of switching meds even though I've requested it repeatedly. I sought out a different Dr and the new one kept me on same med (zonisimide) and dosages and seizures keep getting more frequent and worse and are now coming in clusters that sometimes last for a week!. Only thing nee Dr did was add Nayzilam… read more

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

I was asked this tonight. Because of my birthdate. They said they remember the liberty train 🚂 and I should remember something that can mark around what my possible age could be. Ok so my oldest memory is Reagan getting shot. I think eighties. Don't really help. Everything I find says my birthday mid to early 70's

Has anyone who was diagnosed later on in life with epilepsy had migraines that started at the same time. I never had a migraine in my life and since my first seizure I’ve had constant migraines which are mostly under control with propranolol but any change in dosage and I’m crippled with migraines for days.
Has anyone else been in this situation?