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Have You Ever Been Accused Of Faking Epilepsy To Get Attention?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Not being believed is worse than a seizure. I hope your days are sunny and peaceful.

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Barometric Pressure's Effect On Seizures
A MyEpilepsyTeam Member asked a question 💭

Earlier today, a rain storm came through. Maybe a minute before this, something happened, rather not discuss it. Thought about brain tumors and intracranial pressure. When the barometer drops, ICP is higher than the pressure outside of the head. Had brain surgery, and brain tumors have the same effect- the tumor presses on the brain. Any experiences with sudden changes in air pressure?

Thanks.

A MyEpilepsyTeam Member

Me too. Exactly my experience, every word. Even what my neurologist said to me this morning, exactly word for word. He said he had deep experience with epilepsy for many years and never heard of air… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

I Have Read About People Losing Loved Ones To Epilepsy Is It Epilepsy That Takes Them, Is It What Happens To Them During The Seizure.
A MyEpilepsyTeam Member asked a question 💭

My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?

A MyEpilepsyTeam Member

I would say when for some reason the seizures can not be controlled, no matter what they do

My Ex Bf Passed Away From A Seizure That Caused Him To Go Into Cardiac Arrest He Had Fetal Alcohol Syndrome Is This Kind Of Death Common
A MyEpilepsyTeam Member asked a question 💭

My ex bf was 29 years when he passed away from a random sezure at the age of 29 he was born with fetal alcohol syndrome and scaring on the left side of the brain..is this something that happens and could there have been anything to prevent his premature death

A MyEpilepsyTeam Member

He may of had a a SUDEP ( sudden unexplained death in epilepsy ) . The best thing is to talk to a specialist in this area

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

I wouldn't know, Besides Diagnozed with 4 forms of Epilepsy since 1982 to the year 2000, also had 1 new type of Seizures with Full Amnesia that Lasted 3 days long every single time I had Prescription… read more

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What Is Your New Years Resolution(s)?
A MyEpilepsyTeam Member asked a question 💭

my new years resolution is to to be healthyer. just wondering what is your new years resolution(s)?

A MyEpilepsyTeam Member

MarleneFerraro: thank you and good luck to you as well! i always have a list of things i'm working towards. Sometimes i dont hit the goal by the time i set it so i reevaluate and adjust what i need to… read more

Does Anyone Get Scared When You Since That You Are Going To Have A Seizure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more