No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Has anyone experience a weight gain on @Keppra? I have gained almost 20 lbs in just 45 days. I also take Zoloft for depression and anxiety.
Yes keppra did it to me and it does to some ppl
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.
I take 145 mg of phenobarbital.
116 at night
On it 29 years
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
I am having my VNS "installed", lol, on Monday. I am nervous. Does it hurt when you're recovering? I'll be put out for it, but I'm nervous about the pain when I wake up. Does it feel weird having this thing in your body? I'm not normally a worrier and I'm pretty tough. When delivering my babies, the doctor asked if I had nerve endings because I was smiling and laughing through the contractions and pushing, lol (without an epidural, I might add, proudly, haha). But I'm worried about the… read more
I've had a VNS installed approximately three years ago. I've had to have the output increased approximately two years ago. I haven't had any problems with the VNS except the Doctor's evaluation that… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.