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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Phenobarbital
A MyEpilepsyTeam Member asked a question 💭

As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.

A MyEpilepsyTeam Member

I take 145 mg of phenobarbital.

116 at night

On it 29 years

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

Hi Just Wondering Did Anyone Experience Speech Problems On Tegretol
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

On it 46 years no problems.

How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Has Anyone On Depoke Had Level Too High To Low Not At Normal
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Mine was always to low they could never get it to normal level

I Have Right Temporal Lobe Epilepsy And I'm Currently On Vimpat. Anybody Out There Have Vivid Or Weird Dreams?
A MyEpilepsyTeam Member asked a question 💭

I have right temporal lobe (lesions on the right side)epilepsy and I'm currently on Vimpat. Anybody out there have vivid or weird dreams? Some of mine are extremely life like and some are weird enough that I probably would tell them to anybody. Some of them stick in my memory even when I wish they wouldn't.

A MyEpilepsyTeam Member

Vimpat was a horrible drug for . But when I was on Potiga , boy I was being throw 3-4 dreams a night. I was having dream, that seemed real, to nightmares, to very weird and unusual dreams.

Depakote
A MyEpilepsyTeam Member asked a question 💭

Does it affect your hair and teeth?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I took Depakote probably 15 years ago maybe 19, but depakote is awful. I went through those side effects. I lost hair I gained so much weight and yes it tires the hell out of… read more

Barometric Pressure's Effect On Seizures
A MyEpilepsyTeam Member asked a question 💭

Earlier today, a rain storm came through. Maybe a minute before this, something happened, rather not discuss it. Thought about brain tumors and intracranial pressure. When the barometer drops, ICP is higher than the pressure outside of the head. Had brain surgery, and brain tumors have the same effect- the tumor presses on the brain. Any experiences with sudden changes in air pressure?

Thanks.

A MyEpilepsyTeam Member

Me too. Exactly my experience, every word. Even what my neurologist said to me this morning, exactly word for word. He said he had deep experience with epilepsy for many years and never heard of air… read more

What’s Your Favorite, And Least Favorite Thing About An EEG?
A MyEpilepsyTeam Member asked a question 💭

Favorite:
Sleeping or watching tv

Least favorite:
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill

A MyEpilepsyTeam Member

My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!

Do Adults Grow Out Of Their Epilepsy Like How Kids Do?
A MyEpilepsyTeam Member asked a question 💭

I know some kids grow out of their seizures as they get older but do adults do?? I hope it is common.

A MyEpilepsyTeam Member

Thank you John, your answers have always been very useful/helpful and very easy to understand with the way you explain things.