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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

Has Anyone Had Surgery To Correct Seizures Coming From The Right Temporal Lobe?
A MyEpilepsyTeam Member asked a question 💭

Surgery may be an option but I am very nervous about it. Any information you can share will be appreciated.

A MyEpilepsyTeam Member

I'm recovering from my Right Lobectomy Brain Surgery.🙂 I had it on 12-3-12. I've been seizure free 6-5-13. I've been seizure free for almost 10 years. 🙂 I've been having seizures since I was 6 months… read more

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Which Of You Who Have Had Any Form Of Brain Surgery Would Not Do So If You Could Go Back In Time With The Knowledge You Have Now?
A MyEpilepsyTeam Member asked a question 💭

I know that a few of my friends have expressed that if that had known before they had their first brain surgery what they know now, then they never would have agreed to it. Who else feels this way? How many feel that the brain surgeries have improved your quality of life?

I am not going into this eventual trip to the seizure center with any intention of agreeing to a brain surgery until there is no other options. I believe because my neurologist is at least in his late 60s, that he is very… read more

A MyEpilepsyTeam Member

But the good thing for me is going through all the pain I became seizure free.

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Is There A Meeting Site For People With Epilepsy Like A Video Group Discussion ?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

not on this site but i and a couple of my team friends are going to get video chats on skype (or zoom or other video calls) and send it to video using the pic/video
another way is to live q&a (but i… read more

How Likely Is It That One Or Any Of My 3 Children Will Also Develop Epilepsy At Some Point?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

As Bryan explains, if you listen to his pod cast, there are a lot of reasons (unfortunately the most frequent is unknown) of why an individual of any age develops Epilepsy.

Not to mention, even if… read more

Prevergen, Neurvive, Potassium? Thoughts, Experience? I Didn't See Any Of Those Mentioned In The Vitamins, Minerals, Supplements Chain
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My siezure RX depletes my body of Magnesium Oxide. I was having severe cramping muscles. I also am B12 deficient. Other blood levels good. Hope Mum is feeling better! GOD BLESS!