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I am 57 with MS. I am mobile but still have some issues such as falling and dizziness. 2 weeks ago I had 3 seizures in 2 days. Have never had 1. Went to neuro and after tests declared my ms has caused epilepsy. Do you spend time alone? I find myself being afraid to be alone.
Keppra is the medication I am on also.
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone
The stress ï now have too much in my mind. Take it one day at a time
Favorite:
Sleeping or watching tv
Least favorite:
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill
My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!
I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...
The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊
It doesn't matter how much I try paying attention to the conversation. I couldn't tell you everything word for word even if it's just happened. It's like it goes in one ear and out the other. Like following instructions if I've been given 3/4 things to do if I've not written down I would be able to remember 3 & 4 but not 1 & 2
@A MyEpilepsyTeam Member I am sorry to hear that your family reacts that way. However, you have friends on here, and we can reassure you that you are normal. Epilepsy/Seizure Disorder doesn't make… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
My 3 1/2 year old so was recently diagnosed with idiopathic generalised epilepsy and likely to start Keppra soon. Does anyone have any good resources about talking about epilepsy and taking medication for this age group. Many thanks
I would start looking into short stories for kids and comics .
Story Books ……
Lee the Rabbit with Epilepsy
Dottie the Dalmatian has Epilepsy
Living with Seizures
Because You are My Best Friend
… read more
I am specifically interested in whether you had
1.. the whole wire removed including the clamps around the vagus nerve
2. The whole wire removed except 2 cm closest to the nerve
3. Just took the generator out but left the entire wire
My understanding is that if you leave the whole wire in but take the generator out, you can no longer have an MRI
Did you have any symptoms related to the wire remnant?
Did you have any complications?
Did it seem like an easy surgery?
Any advice?
Thanks!!
JamSimm,
Thanks for the hug.