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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Urinary Incontinence Because Of Meds
A MyEpilepsyTeam Member asked a question 💭

Are there other people who also suffer from urinary incontinence because of meds

A MyEpilepsyTeam Member

Yep! I find it almost impossible to go to sleep without visiting the bathroom several times during the night, just making sure that I won't have an accident. Highly irritating & not something I often… read more

Charlottes Webb
A MyEpilepsyTeam Member asked a question 💭

I ordered a vial of charlottes webb CBD oil last night, for the very first time. I wonder how much should I take when I get it?

Will it make me test positive for illegal drugs?

Is it the same charlottes webb that people move to Colorado for? If so, why move.....??

A MyEpilepsyTeam Member

Good to see you @A MyEpilepsyTeam Member!

Why Not Valium?
A MyEpilepsyTeam Member asked a question 💭

I have never misused any of my medicine and was on diazepam(valium) prescribed by my family doctor but was taken off by my neurologist. He said that if they needed to treat me in the emergency room that is what they would use. I understand that but I only used it if I felt like one was coming on so I don't see a big problem here. What happens when my heart gives out due to a grandmal seizure?

A MyEpilepsyTeam Member

Valium was used alot at the Maudsley hospital's epilepsy unit in South East London, a few of my friends at Windsor House were on it, who had also depression. I never took it

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Tpbacco And Seizures Pthe Is
A MyEpilepsyTeam Member asked a question 💭

Is it true Tabasco is a siezute triggetlr

A MyEpilepsyTeam Member

Very good NatashaPaquette! I never looked at it that way!

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

Does Anyone Here Have Temporal Lobe Epilepsy ?
A MyEpilepsyTeam Member asked a question 💭

i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly

A MyEpilepsyTeam Member

Francis2,
I don’t blame You!

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Can You All Show Some Of Your Talents?
A MyEpilepsyTeam Member asked a question 💭

I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine

A MyEpilepsyTeam Member

Mantle
Love your description w/ math!

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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