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i want to know as much as possiable about it they r talking about doin this on my daughter
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Does anyone else have an up & down type of depression? One day you’re good, another day you’re doing well but something small makes you emotional & cry all of the sudden, another day you're good but something annoying happens & you get angry fast, another day and you’re sitting with your kitty (or other pet) on your lap at 8pm & you just hold them, thanking them & saying you love them, because they’ve saved your life... going in an up & down wobbly circle.
As well as my epilepsy I also suffer from depression so I am on antidepressants as well as my anticonvulsants anyway.
I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.
I have a very bad short term memory but a good long term memory
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
Our son was diagnosed with CAE when he was 3 years old, he's now 11 years old & under his consultant was gradually weaned off his medication as he had been seizure free for two years
So since November 2021 he's not been medicated, however over the last two months (from April 2022) we've noticed he's been having what we think to be absent seizures which is having a massive effect on him at school & at home. It's causing his mood to change, he's very tired, he gets headaches & loses… read more
I've had absence seizures (Jeavons syndrome) my entire life. Most of it was med-free because we didn't feel the the side effects of the meds that were available in the 80s justified the pay-off. I… read more
Is it true that people with any of the types of seizures shouldn't drive? I totally understand why I shouldn't (I experience tonic-clonic seizures), but what about those with the other types?
Some states
Periodic medical updates are required each year until seizure free for 3 years.
AND
KENTUCKY 90 days
I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine
Mantle
Love your description w/ math!
In general what jobs do people with uncontrolled epilepsy do?
I have a degree and worked as a Counselor till I had a massive heart attack.