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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Does Anyone Else Have An Up & Down Type Of Depression?
A MyEpilepsyTeam Member asked a question 💭

Does anyone else have an up & down type of depression? One day you’re good, another day you’re doing well but something small makes you emotional & cry all of the sudden, another day you're good but something annoying happens & you get angry fast, another day and you’re sitting with your kitty (or other pet) on your lap at 8pm & you just hold them, thanking them & saying you love them, because they’ve saved your life... going in an up & down wobbly circle.

A MyEpilepsyTeam Member

As well as my epilepsy I also suffer from depression so I am on antidepressants as well as my anticonvulsants anyway.

In Addition To My Epilepsy, I Have A Learning Disability. I Do Not Know If They Are Related. I Know Seizures Have An Effect On Memory.
A MyEpilepsyTeam Member asked a question 💭

I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.

A MyEpilepsyTeam Member

I have a very bad short term memory but a good long term memory

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Childhood Absence Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Our son was diagnosed with CAE when he was 3 years old, he's now 11 years old & under his consultant was gradually weaned off his medication as he had been seizure free for two years
So since November 2021 he's not been medicated, however over the last two months (from April 2022) we've noticed he's been having what we think to be absent seizures which is having a massive effect on him at school & at home. It's causing his mood to change, he's very tired, he gets headaches & loses… read more

A MyEpilepsyTeam Member

I've had absence seizures (Jeavons syndrome) my entire life. Most of it was med-free because we didn't feel the the side effects of the meds that were available in the 80s justified the pay-off. I… read more

Is It Recommended That People With Any Type Of Seizures Not Drive?
A MyEpilepsyTeam Member asked a question 💭

Is it true that people with any of the types of seizures shouldn't drive? I totally understand why I shouldn't (I experience tonic-clonic seizures), but what about those with the other types?

A MyEpilepsyTeam Member

Some states
Periodic medical updates are required each year until seizure free for 3 years.
KENTUCKY 90 days

Can You All Show Some Of Your Talents?
A MyEpilepsyTeam Member asked a question 💭

I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine

A MyEpilepsyTeam Member

Love your description w/ math!

What Jobs And Or Careers Do People With Complex Partial Epilepsy Do?
A MyEpilepsyTeam Member asked a question 💭

In general what jobs do people with uncontrolled epilepsy do?

A MyEpilepsyTeam Member

I have a degree and worked as a Counselor till I had a massive heart attack.