Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Ive had epilepsy since i was born on my 18th birthday my brother stressed me out so much the doctor said i "unlocked" my stress seziures. They are nonelectrical so they couldn't pick anything up on sleep study.
Steve, right now you are in the midst of intense spiritual warfare. What adds to the problem is the negative side effects of the medications that you are taking, and MD's not believing what you try… read more
I'm just wondering because I've noticed that as I'm getting older my seizures first came back and with increased activity
I was diagnosed at 7. They called them Petit Mal back then. I had taken a huge number of medications, dosages and combinations. In my early 20s I had taken all then known AEDs. After a lot of tests, I… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Theyve been trying to get me to get epilepsy brain surgery for years the older I get the more I'm considering it as I'm seeing how it's affecting my life as an adult. I just want to hear other people who have already done it experiences so I know what I'm getting into. Did it completely cure you? Did your seizures get worse? Any mental changes in personality or mood? How painful was it? Etc.
@A MyEpilepsyTeam Member mine was so long ago I forgot about the puffy eyes. I had that as well. You have the same triggers as me
Monday, I have a 24hr EEG to get cleared from driving? I am worried about what will happen if I can’t get cleared 😰
Yea, i know how that feels for sure. And i understand for driving and such but it sucks.
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Not being believed is worse than a seizure. I hope your days are sunny and peaceful.
When I try do some tasks some of my family members will say "are you sure you should be doing that? I will be having surgery soon for an RNS and I know it will really happen during my recovery and after. So I am wondering if anyone has delt with this and hoe you deal with it?
@A MyEpilepsyTeam Member, yeah that is one of my bad habits too.
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too