When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

i want to know as much as possiable about it they r talking about doin this on my daughter

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

I am set to have the ECoG Intracranial EEG(the grid on the surface of the brain), I have had the Depth Electrodes once. With my limited research it sounds that the depth electrodes were significantly easier... Just curious if someone could shine some light on what that whole process looks like and what I have to look forward too.

I live with epilepsy day after day and my dream is to be a video editor but there’s been another dream stopping from happening because of all these meds I’m going to attempt to try it anyways though by training myself for the Navy. I hope my body can take this dream. This is important.

My 5 year old daughter was diagnosed with epilepsy last year. She's been having seizures every 1-2 months since then. But when she has a seizure, it never stops on its own. Every time, she has to go to the hospital and receive diazepam injection. Is there any other person with similar conditions? Will it get worse with time? I'm so worried.

I ask this question because I honestly do not know where I would rate my neurologist. I am not holding it against him that I have not seen him since December 2019 because I he was preparing to get me scheduled to to to the Tufts Medical Seizure Center in March of 2020 when access was shutdown because of the pandemic. Right now, we do not interact at all and he simply faxes in a new prescription to the pharmacy when requested because we need time at that seizure center to figure out what to do… read more

I have been epileptic since I was about 7 years old and am now 27 years old and feel like this past year has been one of the worst when it comes to the amount of seizures I’ve had
At the beginning of 2019, my doctor and I decided to try a new medication called Lamotragine and slowly take me off the older medication carbamezapine as I wasn’t fully under control. While I was on the carbamezapine I would have about 1 seizure/year and it was durable and livrable. We decided to lean another… read more