Will epilepsy watches like embrace and epilert work for secondary generalized seizures
I do know someone had wristband on and they were just tying their shoelaces and the wristband told them they were having a seizure. It sounds like any wristband can't tell the difference between… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Wondering who all is dealing with a child with LGS? Are 4 year old that we adopted has it and ever since they put him on clobazam he had been declining with everything . He has trouble walking talking eating. We were told now he is a 2yr old in a 41/2 yr old body
Hi @A MyEpilepsyTeam Member , You can connect with @A MyEpilepsyTeam Member whose 12 year old son has LGS Epilepsy & Autism. Hope this helps some. You should be able to click on her page name I gave… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Ive been sacked i have epilepsy was diagnosed over 5 years ago my mental health impacts this I had a stage 4 meeting I wasn’t aware of the time till i came into work today meeting was at half 9 I even cancelled a 4 week sick note to come back in as I had a seizure last weekend what can I do I’ve been in the job 9 years 😩any advise please
Sorry to hear. I'm kind of in a similar situation. I wasn't sacked though I basically left to go to another job then I had the seizure 2 months later. Originally I had planned on going back there if I… read more
I got the majority of the "important" questions answered that i asked my docs. I just forgot to ask, how long it takes for the chunk of skull to heal that they cut? Do they use screws to hold it together? Can you feel the fact your skull has been cut or that there are screws(if there is screws)? If anyone has has a resection, do you know a rough estimate what the answers would be? I know i can always ask the day of surgery for more exact answers, i just kinda want to go into knowing ahead of… read more
Research on a reputable site like Mayo, Cleveland, John's Hopkins clinics. Put your questions on Google and choose what those sites offer. This will help you ask better questions as well
Also Gigi… read more
When I try do some tasks some of my family members will say "are you sure you should be doing that? I will be having surgery soon for an RNS and I know it will really happen during my recovery and after. So I am wondering if anyone has delt with this and hoe you deal with it?
@A MyEpilepsyTeam Member, yeah that is one of my bad habits too.
I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...
The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
I'm just wondering because I've noticed that as I'm getting older my seizures first came back and with increased activity
I was diagnosed at 7. They called them Petit Mal back then. I had taken a huge number of medications, dosages and combinations. In my early 20s I had taken all then known AEDs. After a lot of tests, I… read more