Quick Links
Resources
About MyEpilepsyTeam
Powered By
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
FEEL GOOD STORY. Yesterday a woman I've occasionally collaborated with through work (but barely know) called me to ask a question. After that, she asked me how I am. I haven't spoken with her in a few years, so I told her about my epilepsy. Turns out, she was diagnosed with epilepsy the year before I was! We had a grand old time telling seizure stories, complaining about how people don't understand and minimize our symptoms. All the stuff we do on here, only she didn't seem to know much… read more
6. Thus, I have my epilepsy all my life, but I had intermission between 5 and 13/14 years old. And it was not until last April 25th, that I had my last seizure because adding a 4th anticonvulsant… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.
I have a very bad short term memory but a good long term memory
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
I have focal impaired awareness seizures, focus mainly (L) side & sometimes (R), early adult onset. They're not completely controlled by medications, so I've been on many meds throughout the years. Recently, I was diagnosed with hyponatremia. Sodium level 132 a year ago, 127 mid March 2023, 126 a week later. My endocrinologist has me on a restricted fluid intake, which is difficult to do with daily meds, vits, meals, exercise, thirst. Seizure meds I'm currently on are Oxcarbazepine (generic Tril… read more
Please do! Even read up on it. I never heard of hyponatremia until I had routine blood work done. One never knows the havoc epilepsy meds plays on our bodies. I had an extremely low vitamin D… read more
This morning my neurologist said she wanted to swap me from taking 400mg of Lamictal twice a day to taking 1000mg of Keppra twice a day. Can anyone tell me about their experiences with Keppra and should I prepare myself for any particular side effects?
I use keppra 500 2× a day.
I have augar cravings a lot and insomnia and memory loss.
Is anyonelse going thru that?
I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!
I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more