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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Can My Son Have Seizures
A MyEpilepsyTeam Member asked a question 💭

I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me

A MyEpilepsyTeam Member

I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Anyone Diagnosed With JME In Adulthood?
A MyEpilepsyTeam Member asked a question 💭

Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more

A MyEpilepsyTeam Member

Well let us know what happens. Best of luck.

So Is It True No Alcohol With Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I'm curious what the consensus is here

A MyEpilepsyTeam Member

49 years and 6 months ago, 2 grand mal in a row my neurologist said no alcohol. Dilantin for my seizures AA for my alcoholism. I also have limited coffee/caffeine my last grand mal was 15 years ago… read more

Why Am I Blanking Out In The Middle Of Doing Things And When I Come To I Don't Remember What Happened All I Know Is Im On The Floor
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.

I too have blackouts. They are a type of seizure . I also… read more

Who Is Excited About The NFL Playoffs Games?
A MyEpilepsyTeam Member asked a question 💭

I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!

A MyEpilepsyTeam Member

I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more

Has Anyone's Neroligest Tol You That Low Potassium Was The Cause Of A Grand Maul?
A MyEpilepsyTeam Member asked a question 💭

My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.

A MyEpilepsyTeam Member

I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.

What Type Of Seizure Is This?
A MyEpilepsyTeam Member asked a question 💭

I no longer have these, but it used to be a common occurrence. I know there are many, many types of seizures but have never found one that fits what used to happen to me. Can anyone tell me what this is??

* It lasted an entire day. From the time I woke up until I went to bed at night. Usually about 13-16 hours. Was always fine the next day
* I was always conscious.
* Never extra tired.
* No twitches. No pain or even physical discomfort of any kind.
* Most people didn't know anything… read more

A MyEpilepsyTeam Member

I had left temporal seizures and grand Mal now I no longer have them since brain surgery.