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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Hi Just Wondering Did Anyone Experience Speech Problems On Tegretol
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

On it 46 years no problems.

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

Has Anyone Found A Successful Treatment For Catamenial Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I was prescribed Depokote 20 years ago but discontinued shortly after due to side effects and it did not control the hormone triggers. I have had auras for the past 20 years but I have now had 2 grand mal seizures in the last 8 months.

A MyEpilepsyTeam Member

The birth control pill is great for any type of hormone discrepancy. Helps by keeping them sll level so no rise and fall monthly. If you already have say a high estrogen level the sudden increase… read more

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Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

How Have You Dealt With Drs Who Don't Believe You Have Epilespy?
A MyEpilepsyTeam Member asked a question 💭

My PCP and my neuro eye doctor feel that I have epilepsy. However I just saw a doctor who does not believe I have epilepsy and tried to write it off as psychological when I know it is not. They did NOT suggest any realistic treatment. Is there medications for epilepsy stemming from PTSD if it is that hypothetically? Is there a way I could pursue "right to try" for an epilepsy medication to see if it helps her so we could figure out where the episodes are actually coming from? Is it possible for… read more

A MyEpilepsyTeam Member

I’d also point out it’s not clear the link with epilepsy and trauma, wether it’s uncovered more in diagnosis or wether more broadly parental neglect plays a role in developing the pathology.

We also… read more

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How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

Repetitive Burping After Grand Mal
A MyEpilepsyTeam Member asked a question 💭

Can anyone help me… my sibling had a 2 grand mal seizures on Sunday the 22nd. Todays the 26th and the last couple days, of course he’s been tired, lethargic; though he keeps burping. And also he’s like quiet, was anxious. Not immediately responding, though would after a couple tries. Forgets he ate… was nauseous two days ago… moments would come and go. But the burping man… wouldn’t stop
He leaves on feb. first on a flight home. I’m just worried, I love him, and all my family. What do you… read more

A MyEpilepsyTeam Member

Get him to a Dr. Emergency room. May need testing