I had the surgery when I was 42. Most of the memories, I was left with, are from when I was a kid.
I havent quite noticed too much loss of memory yet. Only minimal short term memory loss. Like trying to remember words, or something i dod like yesterday. But other than that i still have a pretty… read more
I just checked where I live and a license is not required for an e-bike.
I would. I don’t have one but have been thinking about it. I have a Mountain Bike that I ride around on.
Hard subject to bring up but has a doctor ever discussed it if not how did you find out
No, I had to figure out it was a thing where the % increased w my seizure type (myoclonic), especially so because it isn't well controlled
Every time I've brought it up for discussion, I pretty much… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I've been through all tests for surgery to my left hippocampus but they're worried about the right side and future potential for amnesia.
Has anyone had this surgery?
How has your memory been after?
Would you say your life has improved?
If you haven't, what helped you make the decision?
I'm 27 so not necessarily young but the thought of losing my memory is extremely scary.
I've had my left temporal lobe done too. I was about 23 yrs of age when I had my surgery . I'm now 42. My seizures still aren't 100% controlled, but the frequency of of them are better. They to be… read more
My son have trouble sleeping. Is this normal in epileptics?
@A MyEpilepsyTeam Member , I’m definitely not on the. I’m on 5 other prescriptions brands . 1 or more of those probably have the side effect of my insomnia.
Hopefully, when my DBS power box is on and… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I had 3 seizures on Saturday and bit up my lip and tongue pretty bad. Any ideas on how to ease the pain help the healing process. I've already been trying sea salt and warm water
Oh my,I hate that happened to you,and I hope you get to feeling better soon
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more