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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Has Anyone Lost Years Of Their Memory After Having Epilepsy Surgery?
A MyEpilepsyTeam Member asked a question 💭

I had the surgery when I was 42. Most of the memories, I was left with, are from when I was a kid.

A MyEpilepsyTeam Member

I havent quite noticed too much loss of memory yet. Only minimal short term memory loss. Like trying to remember words, or something i dod like yesterday. But other than that i still have a pretty… read more

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Does Anyone Who Has Seizures Use An Electronic Bike (e-bike) To Get Around Town/city?
A MyEpilepsyTeam Member asked a question 💭

I just checked where I live and a license is not required for an e-bike.

A MyEpilepsyTeam Member

I would. I don’t have one but have been thinking about it. I have a Mountain Bike that I ride around on.

A MyEpilepsyTeam Member asked a question 💭

Hard subject to bring up but has a doctor ever discussed it if not how did you find out

A MyEpilepsyTeam Member

No, I had to figure out it was a thing where the % increased w my seizure type (myoclonic), especially so because it isn't well controlled
Every time I've brought it up for discussion, I pretty much… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Left Temporal Lobe Surgery
A MyEpilepsyTeam Member asked a question 💭

I've been through all tests for surgery to my left hippocampus but they're worried about the right side and future potential for amnesia.

Has anyone had this surgery?
How has your memory been after?
Would you say your life has improved?
If you haven't, what helped you make the decision?

I'm 27 so not necessarily young but the thought of losing my memory is extremely scary.

A MyEpilepsyTeam Member

I've had my left temporal lobe done too. I was about 23 yrs of age when I had my surgery . I'm now 42. My seizures still aren't 100% controlled, but the frequency of of them are better. They to be… read more

A MyEpilepsyTeam Member asked a question 💭

My son have trouble sleeping. Is this normal in epileptics?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I’m definitely not on the. I’m on 5 other prescriptions brands . 1 or more of those probably have the side effect of my insomnia.

Hopefully, when my DBS power box is on and… read more

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member


Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

I Bit My Lip
A MyEpilepsyTeam Member asked a question 💭

I had 3 seizures on Saturday and bit up my lip and tongue pretty bad. Any ideas on how to ease the pain help the healing process. I've already been trying sea salt and warm water

A MyEpilepsyTeam Member

Oh my,I hate that happened to you,and I hope you get to feeling better soon

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more