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No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
My son is set to have left temporal lobectomy on September 28 2018. I am wanting to talk to people who have had this done and your experiences. We are very nervous.
After all the seizures, achy muscles, meds, hospital stays, ambulance rides. What has this disorder made you appreciate, love, and accept more?
Value life and treasure every second of it
I have had since I was 3 years
Now I am 35
I’ve been trying to lose weight for 2 years now probably 3-4 honestly but losing pounds is definitely a challenge and building motivation is hard so usually I just listen to Motivational Music or something that describes a fight in a song. What do y’all do for more motivation? When you want to change.
As for pulling ourselves out. Talking finding those things that make us seek. That which we want to do not just for ourselves but to help others. I find once mine was the medical field. Now… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
Thanks, Kathryn13.
Article: https://pubmed.ncbi.nlm.nih.gov/15371287
"Reduction in life expectancy can be up to 2 years for people with a diagnosis of idiopathic/cryptogenic epilepsy, and the reduction can be up to 10 years in people with symptomatic epilepsy. Reductions in life expectancy are highest at the time of diagnosis and diminish with time. Our model provides broad estimates, but it appears that the higher mortality rates in people with newly diagnosed epilepsy translate into decreased life expectancy."
You can’t really say when you go to heaven. That’s God’s choice so I don’t believe that stuff about life expectancy with seizures
My specialist has said I can now try for a baby! But i have a few risks cause I’m on 3 medication. 2 are safe but he says the topamax can be a risk...
My son is 28 with uncontrolled seizures since 8 months old,brain damage and operates on about a 10 yr old level. But he knows that men and women have sex,kind of knows what sex is and wants a girlfriend, so he can feel sex(his words). He does not go anywhere socially, we live in a small town and I just dont know how to handle this. Every day he asks me to find him a girlfriend. Help, what should I do?
My son is 21. He has a severe seizure disorder which has left him at about age 10-12 also. He knows that adults should have buddies, girlfriends jobs etc. But he can't go out and find these things on… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum