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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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What’s Your Favorite, And Least Favorite Thing About An EEG?
A MyEpilepsyTeam Member asked a question 💭

Favorite:
Sleeping or watching tv

Least favorite:
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill

A MyEpilepsyTeam Member

My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

Rns Device Implant
A MyEpilepsyTeam Member asked a question 💭

I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.

A MyEpilepsyTeam Member

I have both the VNS & RNS they reduce the strength of thee seizures. My seizures last about 3-5 mins now. Pending on how much meds you’re on, is what you need to think about. Good Luck!!

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How Many Of You Have Full-time Jobs Since Your Discovering You Had Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️

How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Seizures
A MyEpilepsyTeam Member asked a question 💭

I am 57 with MS. I am mobile but still have some issues such as falling and dizziness. 2 weeks ago I had 3 seizures in 2 days. Have never had 1. Went to neuro and after tests declared my ms has caused epilepsy. Do you spend time alone? I find myself being afraid to be alone.

A MyEpilepsyTeam Member

Keppra is the medication I am on also.

Does Anyone Else Struggle With Memory?
A MyEpilepsyTeam Member asked a question 💭

It doesn't matter how much I try paying attention to the conversation. I couldn't tell you everything word for word even if it's just happened. It's like it goes in one ear and out the other. Like following instructions if I've been given 3/4 things to do if I've not written down I would be able to remember 3 & 4 but not 1 & 2

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I am sorry to hear that your family reacts that way. However, you have friends on here, and we can reassure you that you are normal. Epilepsy/Seizure Disorder doesn't make… read more