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if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I know seizures can change life but how are we still supposed to go on in life when alot of people don't hire people with health problems. So college's are the same way? Why
I don't know. Epilepsy took me at around age 45, Single black working living and working middle class and thru me back to a very lower class living. WOW. Yeah SSI, not SSDI for now. I have to lose… read more
I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?
It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.
From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more
My Daily Medicine List
1- Dilantin ((Brand Name) caps 400mg. Per day
2- Lamictal (Brand Name) 700mg. Per day
3- Verapamil 80 mg. Per day
4- Zone gran 400mg.per day
5- Dilantin (chewable) 50mg. Per day
6- Tranxene 7.5 mg per day
7- Singular 10 mg per day (Asthma pill)
8- 2 puffs Advair 2 times per day (Asthma)
9- Sleep with BIPAP at night (improves sleep)
10- As needed to stop seizures 2mg Lorazapam
(Which is only given when I have clusters
Or a longer than normal seizure,… read more
Wolf2677, I am 59 almost 60-10/10/17. For me its been alternating medications and dosages. So far we haven't discussed surgery. Prior to my marriage seizures were about six weeks apart. I got… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Missing 1 no but if you keep missing your medication it will cause sezure I look at it medication good sleep water and less stress 😬 you have to put your self first
Does anyone manufacture a watch to alert to seizures, heart problems, etc.
I only have two skinny wrists, so I don't have a lot of room for multiple watches.😁
Robert5
My phone doesn't automatically call 911. It sent a picture to certain contacts. When I had a heart attack & my daughter called 911 from Michigan I tried to convince EMTs all I needed was a… read more
After all the seizures, achy muscles, meds, hospital stays, ambulance rides. What has this disorder made you appreciate, love, and accept more?
Value life and treasure every second of it
I have had since I was 3 years
Now I am 35