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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Rns Device Implant
A MyEpilepsyTeam Member asked a question 💭

I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.

A MyEpilepsyTeam Member

I have had the RNS for 4 years 1 battery replacement and a ton of adjustments. When I first got it i was having 12-14 seizures a month. Now I'm down to 4-6 so cut in half and some of them I barely… read more

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Seizures For More Than 40 Years, Information
A MyEpilepsyTeam Member asked a question 💭

If you read my profile I posted what happened to me and how things worked out.

The most important thing to tell you is you may need an adjustment in medication. This may not work for you but it may and you must talk to your doctor about it.

When i was young i failed in school no matter how hard i tried. At about 20 i had a seizure. When i went to the doctor he prescripted Dilantin to me. It made me sick and dizzy every time I took it so I wouldn't take it.

I went to the doctor and… read more

A MyEpilepsyTeam Member

Im 60, same thing.... except only 1 1/12 since surgery... The entire thing to realize is it takes time, and more time, but you come around... lol

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Why Am I Blanking Out In The Middle Of Doing Things And When I Come To I Don't Remember What Happened All I Know Is Im On The Floor
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.

I too have blackouts. They are a type of seizure . I also… read more

What Is Your Sleep Like?
A MyEpilepsyTeam Member asked a question 💭

I was reviewing my sleep log (started keeping one July 13, 2018). I haven’t been to bed before midnight. A couple of nights I went to bed at midnight but more often it is between 2am-5am. I don’t have a consistent sleep pattern. Some nights it’s 4 hours, some nights it’s 10 hours. Regardless of how many hours I sleep, I feel wiped out when I wake up.

What is your experience like?

A MyEpilepsyTeam Member

I'm flakey as far as my sleep schedule. It's regular, but off hours. Unless I'm involved in physical activity, by 9:00 pm I can't stay awake. If I go to sleep, I'm up by 4:00 am, wide awake. I keep… read more

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

I’ve Been Haveing Seizures For 20 Years Has Anyone Been Able To Get Away From The Pills?
A MyEpilepsyTeam Member asked a question 💭

I take 12 pills a day and unfortunately without them I will have a seizure,I was wondering if anyone had been able to get away from the pills with a alternate medication.....doesn’t help that I live in GA

A MyEpilepsyTeam Member

You've had seizures over 20 years but still fine & healthy. Thank your meds for protecting you. Above Shellee points out how crazy for a diabetic to not take insulin for diabetes. "Oh my God I have… read more