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Happy Pill?
A MyEpilepsyTeam Member asked a question 💭

I'm a Status Epileptic. I have a fast dissolving Zanax to stop my seizures. The next day I wake up in an angry raging mood. I tried various types of cannabis, but nothing took away the rage. I started taking psychedelic mushrooms on occasion to help build my neurons. Was wondering if anyone thought about how they are going to use the mushrooms to help?

A MyEpilepsyTeam Member

Im exactly the same i would be very angry, but took it out on my friends and my family
I felt i didnt like to be like the angry i got
Saw a phyayrist and she gave me some tablets and now im better.so… read more

Does Anyone Have Status Epilepsy That Can Tell Me Some Of Your Signs And What Triggers Yours. I
A MyEpilepsyTeam Member asked a question 💭

Mine have lasted for a day to 3 days. I get so tired I can barely walk. My eyes get so heavy until they start blinking. Most of the time I can hear but not move. Riding in a car makes me have one. Just wondering about someone else that has status epilepsy.

A MyEpilepsyTeam Member

I also have mood changes from being a shy person to being a telling friends if I liked something or not. Now they get exactly what I think and it's very up & down the moods.

I Bit My Lip
A MyEpilepsyTeam Member asked a question 💭

I had 3 seizures on Saturday and bit up my lip and tongue pretty bad. Any ideas on how to ease the pain help the healing process. I've already been trying sea salt and warm water

A MyEpilepsyTeam Member

Oh my,I hate that happened to you,and I hope you get to feeling better soon

Possible Dismissal
A MyEpilepsyTeam Member asked a question 💭

I suffer with epilepsy, hypothyroidism and fibromyalgia along with other conditions. I have had considerable amounts of absence tho majority is with a GP certificate. I had a severe Epileptic seizure causing me to hallucinate where I had to be taken into hospital. My HR have me on absence review and now that I have revoked the number of days I am allowed this month even though I was certified, I now face another formal review meeting to discuss the possibility of dismissal. I applied for PIP… read more

A MyEpilepsyTeam Member

Is it legal to dismiss people with disabilities. Here they have to do their best to find a person jobs that are more suited to the workplace and the employee or medical retirement if its impossible. I… read more

What Are The Best Diapers To Use
A MyEpilepsyTeam Member asked a question 💭

What are the best diapers to use to control your epilepsy I have had it since I was 12 now I am thirty

A MyEpilepsyTeam Member

I prefer Always brand Descreet Briefs over Depend cause they are
little bikinis and I'm little too. And they work better too. .

Which MediCATION Made Your Hair Fall Out
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Keppra. The first thing that my Dr said was about hair thinning

Anyone Diagnosed With JME In Adulthood?
A MyEpilepsyTeam Member asked a question 💭

Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more

A MyEpilepsyTeam Member

Well let us know what happens. Best of luck.

Who Is Excited About The NFL Playoffs Games?
A MyEpilepsyTeam Member asked a question 💭

I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!

A MyEpilepsyTeam Member

I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

VNS Therapy
A MyEpilepsyTeam Member asked a question 💭

My son has been suffering from seizures for 2 years. No meds seem to work. He was recently diagnosed with a new gene mutation called DALGA. Its very new to the point they dont know much about it. It is the cause of my sons seizures.
Now, they are talking about VNS therapy.
If anyone has it i would like to know more about your experience or if you know someone with it. Anything will be helpful. Please & thank you!

A MyEpilepsyTeam Member

You could ask if you are a canidate for RNS (responsive nuerostimulator). It stimulates without needed a magnet to trigger it. It is based off of eeg monitoring from electrodes in your brain. I have… read more

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