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How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Does Anyone Lives Near Greenville, NC??
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No I live in Cornelius NC

Understanding What Type Seizure
A MyEpilepsyTeam Member asked a question 💭

I am interested in anyone possibly knowing what type of seizure would cause what I guess is an aura. I feel really weird before it happens. My body starts tingling. I start feeling disoriented. Like I’m going to pass out. But during my last seizure I didn’t fully lose consciousness. But I was having convulsions my body was tightening. I felt out of body
I couldn’t control it. I remember bits and pieces. But was told what else occurred. There was a lot of confusion after. I couldn’t speak I was… read more

A MyEpilepsyTeam Member

Thank you all for your responses. Seizures are such a wild thing because, it feels so scary, and you can’t tell what’s going on .. and then there’s the before , in it and ending phase
I am like 3… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

I Was Diagnosed With Epilepsy In 2021 At 55.
A MyEpilepsyTeam Member asked a question 💭

I have had so many tests with no real answers. The docs just want to keep testing on me. Now they are talking about doing test with Phase 2 electrodes so they can find the source and dig that part out. I am having alot of stress about that. I am not confident with them. They are Stanford docs so they at the top of their field, I guess. Not sure I want to have my brain touched electrodes and really not sure about digging out parts. I have been on 5 different AEDs. Stopped the Gran Mals but having… read more

A MyEpilepsyTeam Member

Shoot i can barely remember anything anymore. Hit my head so many times plus someone tried killing my ass once lol. Heads a little to strong though due to all the hits. I got that super hero skull… read more

I've Had Epilepsy Since I Was 12 Years Old. And I Still Can't Tell What My Aura Is. How Did You Guy's Figure Out What Yours Were?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I remember when I had told my doctor about having these frightening feelings I get like something bad was going to happen. My doctor had nothing to say. It was not until I changed doctors when I was… read more

Phenobarbital
A MyEpilepsyTeam Member asked a question 💭

As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.

A MyEpilepsyTeam Member

I take 145 mg of phenobarbital.

116 at night

On it 29 years

Can You Get The Chills After A Seizure?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

But still get hot though

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more