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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Weight Gain On Keppra
A MyEpilepsyTeam Member asked a question 💭

Has anyone experience a weight gain on @Keppra? I have gained almost 20 lbs in just 45 days. I also take Zoloft for depression and anxiety.

A MyEpilepsyTeam Member

Yes keppra did it to me and it does to some ppl

Has Anyone's Neroligest Tol You That Low Potassium Was The Cause Of A Grand Maul?
A MyEpilepsyTeam Member asked a question 💭

My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.

A MyEpilepsyTeam Member

I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.

Having Children
A MyEpilepsyTeam Member asked a question 💭

Hello,

Me and my boyfriend are thinking about having a baby in the future. I have a generalized form of epilespy that is controlled, but I will be on medicine for the remainder of my life. My doctor says I can't be on my meds while pragnaet and I guess I want to hear stories about what this has been like for other people

A MyEpilepsyTeam Member

Hope this helps

Overwhelmingly Sleepy
A MyEpilepsyTeam Member asked a question 💭

I have days where I have to really fight to stay awake. It's next to impossible to keep my eyes open.
I've been tested for a lot of things; but so far no answers.
Yesterday I underwent a Doppler ultrasound of my carotid arteries. (I'll have to wait several days for the results.)
Has anyone else experienced such sleepiness?

A MyEpilepsyTeam Member

🤒Oh no! Francis
You're right to seek further help. My doctors have told me that antibiotics usually have done their most work after 5 days. Maybe you need something stronger
Please keep us posted.… read more

Have Anyone Had Children During The Epilepsy Exspireince ? , Being Diagnosed Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I am 25 years old , is scared to have children because of my disgnose , I need a little support ,

A MyEpilepsyTeam Member

I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.

The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more

What Do People Do For Anxiety Instead Of Meds? In Example Breathing Control.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Good way to help yourself. Like it.

Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too