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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Anyone Feel Defeated When They Have To Adjust Meds And Can't Drive?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No. I did lose the ability to drive b/c of complex partial seizures (new term used today after 2017 reclassification but you know what I mean) for about 3 yrs. But I'm driving again. So keep the… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I had more seizures in my 40's than any other time except my teens. The seizures I had in peri menapause were also more severe, causing a loss of memory and balance. It took weeks to get over each… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Does Anyones Faith Carry Them When Everything Else Is Bleak
A MyEpilepsyTeam Member asked a question 💭

Please I need some inspirational stories I love em they fuel me

A MyEpilepsyTeam Member

God would never put anything on your back that you couldn’t carry! So as Francis2 said show that happy love from God when you have something hard,(that Jesus can help you with) to others. You never… read more

Job/Careers
A MyEpilepsyTeam Member asked a question 💭

How do you deal with epilepsy at work? I'm scared to get a job if one of them occurs while I'm working

A MyEpilepsyTeam Member

Clare Love to hear a more positive way to deal with epilepsy. We know we are fine after a seizure so why worry or restrict self? Just deal with seizures as they occur not fill your mind with all the… read more

Vertigo
A MyEpilepsyTeam Member asked a question 💭

Does anyone else have problems with Vertigo, on Keppra and been 21 months seizure free and praying it continues like this xx

A MyEpilepsyTeam Member

I have experienced vertigo both on and off meds. I've never experienced it when up and walking around. Both have had it multiple times while sitting down. The room starts to spin so badly that I… read more

What If You Have Undiagnosed Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I have grand mal seizures Myoclonic seizures but my neurologist and I have gone through every test in the book to find where the seizures misfire in my brain. We can not find it, no where? Any ideas?

A MyEpilepsyTeam Member

I have had to many eeg’s in my life. I have had at least ten where I was stuck in a hospital. Once I agreed to stay in the hospital 🏥 for one. The last one is when I had all the electrodes glued to… read more

What Medications Is Everyone Using To Control Their Body Temperature? Need Something To Cool Down, Can't Even Go Outside Without Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have a small cooler with frozen water bottles that I change daily, add wash cloths and a touch of water. Too much water or towels cause the cooler to get stinky. I’m on the go similar. A frozen wash… read more

Employmeny Quiz For Peolpe With Disability
A MyEpilepsyTeam Member asked a question 💭

Has anyone ever done an Employment quiz for people with a Disability or to be more specific who have epilepsy?

A MyEpilepsyTeam Member

I would have to say no. Never experienced it, nor heard of it.

Has Your Attention Span Shortened After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?

A MyEpilepsyTeam Member

Thanks, Kathryn13.