Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Lack of sleep is a Trigger, so I go to sleep after 9 AM.
They somehow were under the impression I would need a Nurse with me at all times. I did not move there because they do not provide that level of care. My Conservator will continue working on it… read more
Ive been sacked i have epilepsy was diagnosed over 5 years ago my mental health impacts this I had a stage 4 meeting I wasn’t aware of the time till i came into work today meeting was at half 9 I even cancelled a 4 week sick note to come back in as I had a seizure last weekend what can I do I’ve been in the job 9 years 😩any advise please
Sorry to hear. I'm kind of in a similar situation. I wasn't sacked though I basically left to go to another job then I had the seizure 2 months later. Originally I had planned on going back there if I… read more
Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.
I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I used to be the top of my… read more
I know the feeling....Except my neurologists over the years were not saying the surgery aspect. But I have been thru 9 medications now. I'm taking 2 medications now. But have dealt with 9 over the… read more
I was on it years ago it didn't work for me on different meds the question is does it work?
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Good way to help yourself. Like it.
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
Ive have 9 seizures in the last 2 months while Trileptal and Folic Acid. Is this normal?
ya I have break through all the time time and it makes me not won’t to take my medications
My daughter is 9 and will be starting to wean off her Briviact soon. Has any parent weaned their child? She had been on Keppra, weaned off but developed seizures and had to go back on. Her behavior was really difficult so she changed to Briviact about 2 years ago and she’s been seizure free. We are trying again to wean off and I was hoping to talk to someone who has done this. Thank you!