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When did you get it?
1950s
1960s
1970s
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1990s
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Diagnosed 1992 I think winter. Oh wait nope summer.
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
John
Where I live they have made wearing masks up to us. We are still 6 feet away from one another. The small activities only allow 10 people in a room, still. I am sure the isolation when we could… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
In May 2021, my son who was 7 years old at the time and experienced a grand mal seizure on an airplane. I would like to fly him from Florida to Seattle but I am scared to death of putting him on another plane. Has anyone ever had a grand mal seizure on the plane and if so did you ever fly again? And if you fly it again did you have a seizure?
Thank you! All the 3 neurologist tells me it’s ok for him to fly. That airplanes and altitude are not known seizure triggers. I Google a lot and find many accounts where people have had seizures… read more
I know that if I had a grand mal seizure when I was at Brigham and Women's Hospital for EEG Long Term Monitoring, then a separate recording device in the room (wireless) could have been used in the research for this potential replacement for all of the wires needing to be attached during EEG testing and especially EEG Long Term Monitoring. This was not the standard clinical trial because it is simply getting the patient in the EEG Long Term Monitoring to agree to have the wireless machine in… read more
Forgive me @A MyEpilepsyTeam Member. I did not see that you had already asked this question. I was on a run, so to speak, and it just kinda popped in my head.
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age