Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I haven't been on for a while and I'm sure it's already been asked but....
How many of you have had the Covid-19 shots (and which one and why).
Also, my doctor wants me to get Pfizer along with my partner,
but by the time he gets it his work would have started and he won't because he hasn't had the shot.
Again, we can have the Astra in a few days and everything would be alright.
I'm very confused,
I am alright I had the Oxford Astra zenica an I am perfectly alright they are saying for the booster we might get the one the doctors are asking you to have they have studied having them mixed first… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
i want to know as much as possiable about it they r talking about doin this on my daughter
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
I have made a routine of taking my medications, however, when something disrupts that routine, I sometimes tend to forget to take my medication. How you found anything useful to help you remember take your medications?
Got a pill box to lay on my table, is a weeks supply at a time! Alarms on iPad and telephone come in handy! Thanks for asking