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No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
Hum I wonder if addiction is on that list of side effects? Or the term dependency? I'm just curious. Seems that side effect gets missed sometimes.
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
Wondering who all is dealing with a child with LGS? Are 4 year old that we adopted has it and ever since they put him on clobazam he had been declining with everything . He has trouble walking talking eating. We were told now he is a 2yr old in a 41/2 yr old body
Hi @A MyEpilepsyTeam Member , You can connect with @A MyEpilepsyTeam Member whose 12 year old son has LGS Epilepsy & Autism. Hope this helps some. You should be able to click on her page name I gave… read more
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
I'm just wondering because I've noticed that as I'm getting older my seizures first came back and with increased activity
I was diagnosed at 7. They called them Petit Mal back then. I had taken a huge number of medications, dosages and combinations. In my early 20s I had taken all then known AEDs. After a lot of tests, I… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more