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Is There A Connection Between Shingles And Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I just wondered if Epilepsy could have increased my chances of getting Shingles seeing that they are both nervous system / brain related. I noticed a burny itchy spot in my cheek a few days ago. Its getting bigger. The rest of my right side of my face started itching too. And the back of my neck and down my back. So walked into the pharmacy today after church to get an antihistamine for this strange "allergy" I have. And the pharmacist told me it's not an allergy. IT'S SHINGLES! No wonder I've… read more

A MyEpilepsyTeam Member

I am having shingles on my right side right now. I also had them when I was a teenager. I've had three seizures since I've been aware of the shingles on my back..I feel really out of it and hurting… read more

Have You Ever Been Accused Of Faking Epilepsy To Get Attention?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Not being believed is worse than a seizure. I hope your days are sunny and peaceful.

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more

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Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Do Any Of You Work Odd Hours/nightshift? Does It Affect Your Epilepsy? How Do You Manage?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

When I was working , I was only able to work 2nd and 3rd shifts. I was never able to wake up for early morning shifts. First time I tried to work the first shift , I was fired in 3 days , because I… read more

Driving With Simple Partial Seizures???
A MyEpilepsyTeam Member asked a question 💭

I've had epilepsy for 30 years. Simple partial seizures with no loss of awareness, but I've had a few complex partial seizures. I have on average one or two simple partials every month but sometimes I go for 3 months seizure free. The last complex partial was a year ago. I have a strong and lengthy aura on every seizure and my eye twitches strongly.

I've had quite a few neuro docs and seems like they all want me to take different meds. I've been on Trileptal and zonisamide for about 2… read more

A MyEpilepsyTeam Member

I would ask to see a different doctor at the office, and file a complaint. If there isn't another I would seek a new neurologist. With regard to the driving you may want to check with the local laws… read more

Has Anyone Had Brain Surgery To Correct Their Seizures? Im Scared And Would Love To Hear Your Stories And Get Any Advice I Can
A MyEpilepsyTeam Member asked a question 💭

I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more

A MyEpilepsyTeam Member

I had surgery in July of 2004, a left frontol lobectomy. I guess my only side effect was that my IQ increased to an above average level, it's working well, my last seizure was in 2011 and I still take… read more

DVD For Schools On Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Epilepsy Ireland
Published on Jul 27, 2011
Brainwave and three other Irish charities have come together to produce a new resource pack for schools on the management of chronic health conditions.

Along with epilepsy, the "Managing Chronic Health Conditions at School" resource pack also deals with diabetes (Diabetes Federation of Ireland), asthma (Asthma Society of Ireland) and anaphylaxis (Anaphylaxis Ireland).

The pack includes a 9 minute DVD on managing each condition at school. This is the… read more

A MyEpilepsyTeam Member

Wow this is Awesome

Dent In Head Post-op?
A MyEpilepsyTeam Member asked a question 💭

Im 4 months post op- craniotomy, and it seems like i have a dent in a portion of my head where the bone flap was taken out. Is that normal and will it forever stay that way, or will it "fill in" with time? My doctors didnt really answer me last time i asked back in november, they probably didnt understand my question.

A MyEpilepsyTeam Member

I will be having right side temporal surgery in 2 stages. First to do a elegant procedure than 2nd to do removal of effective area. My surgeon said bone won't grow back. But skin will grow back in 2… read more