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I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️
i want to know as much as possiable about it they r talking about doin this on my daughter
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine
Mantle
Love your description w/ math!
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
I know that a few of my friends have expressed that if that had known before they had their first brain surgery what they know now, then they never would have agreed to it. Who else feels this way? How many feel that the brain surgeries have improved your quality of life?
I am not going into this eventual trip to the seizure center with any intention of agreeing to a brain surgery until there is no other options. I believe because my neurologist is at least in his late 60s, that he is very… read more
But the good thing for me is going through all the pain I became seizure free.