Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Anyone have seizure reactions to watching a 3D movie? I sure would like to watch Thor Love and Thunder in 3D but not sure if my brain will react. Thoughts please?
I think the type of movies like being a stressful or comedy might have something different each time too!
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
They plan on moving me to an Assisted Living Facility. I am deeply concerned about keeping the Oral Syringes clean and dry. I do a wonderful job, and the Nurse who visits agrees.
Does anyone know how this is dealt with in these places?
Because they think I need a nurse all the time I would not qualify. However, I ended up ordering 30 extra new ones. It was15, but they come in packages of 2. I also gave the Doctor the… read more
So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more
read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling
Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?
I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate
My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.
@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more
I had a 5 hr seizure episode on Monday, no loss of consciousness, just thendrops, myclonic jerks, ect
For the last 2 days, I've been so tired, nauseated and a hv huge headache. Also I'm feeling panicky. I hv this imminent sense of doom and my aura just won't go away
So I caved at called my pcp, cause I havent seen a neurologist is over 12 yrs.(I am cutrently not on any meds) Ofcourse he sent me to the E.R right away and here I am, waiting to been seen. I'm freaking out, what if they wanna… read more
The longest time I've had one was 30 minutes. My worst ones as an adult was 11/29/2014 I had 6 seizures 30 minutes each one right after the other. Right before that I had made it to one year without… read more
I seem to be unable to stay awake when I take this medication. Has anyone else had bad side effects?
I've had it but they only gave it to me for four days. Apparently its a very strong Med.