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When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
My first EEG came back abnormal. I get seizures daily and now I am taking the 3 day EEG at home. I want to make sure I don't do anything that would give wrong results. Can medication, drinking coffee or moving head cause it to be abnormal? Can the EEG not show my seizure? I want to make sure that this test will show what is happening. Can the test be normal even though the seizures are happenings? I am having so much anxiety about this
I am having the seizures and if this test is not showing… read more
Does anyone do support groups where they live? I am having a lot of issues at home, because of my health. Dr's are not helping either. I would love to be around others that understand and possibly can… read more
Raylene, There are two-2-types of Disability that Social Security issues they are: SSI and SSDI . Be certain that you get the type of Disability that you are qualified to receive. SSI only gives… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Ive been fired from 6 jobs within the past year alone for "too many missed work days" due to seizures. Or my co-workers "being uncomfortable w my epilepsy and chance of seizures". I had a seizure at work at 2 of my jobs and was fired from both shortly after each. My question is, how do you handle others who don't understand epilepsy in the workplace? I'm currently applying for SSDI but it's taking FOREVER! Would you apply for disability or continue to work knowing it would be a less than 6… read more
I applied for disability and had no problem getting it but my situation is a bit defferent because I became legally blind first. I can only see center vision on my left eye and on right lower vision… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
It was in 2014 is when the big scare happened with one of my seizures sorry I was about 2 years off
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I am currently taking 1500 twice a day of Keppra and 150 of Vimpat twice a day. I have vision and fatigue as my two major side effects with Keppra and have talked with my doctor about switching medications. I would continue with the Vimpat, but switch my Keppra to either Lamictal or Briviact. I have done research on both, but would like to hear experiences people have had with both before I make any decisions.
Thank you in advance, I appreciate it!