Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Does anyone use a smart watch app to notify caregivers or family members of their seizures? I see there are a few available. The only approved watch is the Embrace 2. I am looking into using a smart watch with a app.
Thanks for the responses. All of the information is very informative. I guess the reason I would ever want someone alerted is if I'm alone or when I finally move back out of my parents house.
Hi all. My son recently started seizing (grand mal) again after 4 years of being seizure free. I’m looking to buy him a seizure alert device but wanted to know if anyone has any experience with them. I’m currently looking at My Medic Watch App which connects to a smartphone or the Embrace 2 Watch. Are there any other options out there? Your insight is much appreciated.
Hi Becky. My son started having absent seizures when he was 7. At age 15 he suffered from his first grand mal (this happened after his father’s funeral. He died from congestive heart failure)… read more
I have made a routine of taking my medications, however, when something disrupts that routine, I sometimes tend to forget to take my medication. How you found anything useful to help you remember take your medications?
Got a pill box to lay on my table, is a weeks supply at a time! Alarms on iPad and telephone come in handy! Thanks for asking
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Marijuana can help seizures (not in huge amounts in a safe amount) at least I’ve heard I asked my own neurologist and she said it does but not in crazy amounts I personally smoke weed and I’ve found it does help (when it isn’t super bad) if you do yourself what’s your opinion if you don’t still drop your opinion in the comments
Nicotine causes them I have to quit which is difficult but I feel like depending on what type of seizures you have depends on how it effects you
What do you do to remember to take meds when you take more than once a day!
The box I keep my pills in is a decorative box that I sit on a living room table. That way I see it several times each day.
Theyve been trying to get me to get epilepsy brain surgery for years the older I get the more I'm considering it as I'm seeing how it's affecting my life as an adult. I just want to hear other people who have already done it experiences so I know what I'm getting into. Did it completely cure you? Did your seizures get worse? Any mental changes in personality or mood? How painful was it? Etc.
I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊
i want to know as much as possiable about it they r talking about doin this on my daughter