Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Apparently I've read through medical online case studies that covid 19 can cause Ataxia, movement disorders, and Epilepsy after infection .I wanted to add links here but it wouldn't work I find this an interesting thing to know about as I'm wondering could covid 19 infection be the reason for my symptoms the variables in diagnosis are a lot but still it's a possibility.
Nicole The only seizure that can hurt brain cells is if its uncontrolled- status epilepiticus
Repeated one after another same for SUDEP issues. Our meds won't allow this. A breakthru one may occur but… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
I’m hoping to hear from folks who seizures began after they were Covid vaccinated, as is the case with my husband.
Did any of you have your first time ever seizure since you were Covid vaccinated?
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
Before i was diagnosed at age 18 or 19. I had epilepsy since i was 2....but they diagnosed me incorrectly with panic attacks and just said i was acting out for attention. Like no, im not acting out… read more
My name is Mar, 31 years old female, im new to seizures and epilepsy, in Aug 2021 i started having partial seizures. I didnt know they were seizures, i initially thought im having panic attacks or something. Anyways, fast forward to sep 2nd, 2021 i had my first tonic clonic, my husband found me on the floor in my office seizing. Called 911, I had peed myself and bit my tongue which indicated that i had seizure. Anyways i spent 3 days in the hospital where they ran tests (CT scan,… read more
I’m sixty four and still taking medication, I started on medication when I was twelve. Before then, I would have a few seizures in a year, usually in the morning, having to go to school. I have no… read more
This is a general question of public opinion. I myself always assumed it was, but apparently it's not at least according to Social Security in Indiana that is. I finally decided to apply b/c someone else I know receives disability do to having seizures which started after an aneurysm they also happen to work as well. So I decided to give it a try and was denied b/c epilepsy was not a disability that would stop me from working. So opinions do you agree or disagree on Epilepsy being a disability?
In SC, they told me I wouldn’t die from working therefore, I had no disability. I’m still fighting the decision.
Something some said got to me. Not all forms of epilepsy make tou loose consciensness. I am always alart and and aware of several of my triggers. My sezuires are either absent, mind staring or simple/conplex jerks (like a cold chill).
I have complex partial seizures. My neurologist and I have talked about my license as I have brought it up. He sees no reason to revoke my license and my diagnosis does not require them to be.
Anyone else still have their license?
I still have mine but I'm not allowed to drive for 6 months after I've had a sz. Just had a major one that sent me to the hospital and required stitches above my right eye.