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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

What Is The Legal Route To Go When A Person With Epilepsy Has Been Scammed At A Emergency Room At A Hospital?
A MyEpilepsyTeam Member asked a question 💭

About 5 months ago my 2 friends took me to a emergency room at a local hospital. I had a falling seizure a day and half before and I had the symptoms of a concussion. My friends and I wanted to find out if I did have a concussion for sure. Disappointing experience we all had. Didn't find out anything about a concussion. A month and a half later I got 3 bills totalling right under 5 thousand dollars. Got my medical records for that day, for I could get anyway. It was full of lies, with… read more

A MyEpilepsyTeam Member

Unfortunately, you have to let them know you are taking them to court, and if this does not inspire them to listen and fix the records, then take them to court.

How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Medicine Reminder?
A MyEpilepsyTeam Member asked a question 💭

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

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A MyEpilepsyTeam Member

I now have a Nurse who is supposed to come in and set them up. I was running low on some that needed new Prescription Refills. Now I have everything I need. Am very capable of setting up meds. I have… read more

I Want To Know How Other People Have Learnt To Live With Epilepsy And It Has Affected Them
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Naomi Love the way you can handle seizures within your mind. The smart way- you just deal with them if or when they occur. Once we know the reality our mind can relax a bit not get upset or down… read more

Does Anyone Else Feel A "Deja Vu" Before They Have A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Sometimes it is a feeling like I have been in that same exact spot, looking at the same exact thing I have seen in a dream. Sometimes I even wake up to a "Deja Vu" and feel nausea and like I have to diarrhea at the same time.

A MyEpilepsyTeam Member

I have auras just before I have a tonic clonic episode. The auras are enough of a warning that I was able to retain my driver’s license. I can pull over and put my vehicle in bark before I lose… read more

I’ve Always Had Epilepsy And As I Got Older I Learned About The Mental Illnesses I Struggle With So I Go To Therapy For It
A MyEpilepsyTeam Member asked a question 💭

I dissociate a lot. Even before I found out about my mental illnesses. Does anyone else struggle with this. Can it be the epilepsy or the mental illnesses or both? Anyone go through this too?

A MyEpilepsyTeam Member

Your mental illness is due to your minds view of epilepsy. Many other health problems cause this like cancer diabetes etc. Lost my bro due to his diabetes who once said my epilepsy didn't compare to… read more

When You Are Taking The Medication
A MyEpilepsyTeam Member asked a question 💭

When you are asked to take medication in the Morning and Night when Label on the box, would you follow it to 12 Hours between taking it, or what would you think of Various time in the Morning and A Various time at Night? If you didn't have a set 12 Hour Period would you think people would have more Seizures, Because I use to work early at 6am up to Last February, but would take my Medication at 9pm for Night , so this would be over a 12 Hour Period.

A MyEpilepsyTeam Member

Lamictal, Frisium and Epilim Chrono

Rns Device Implant
A MyEpilepsyTeam Member asked a question 💭

I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.

A MyEpilepsyTeam Member

I have had the RNS for 4 years 1 battery replacement and a ton of adjustments. When I first got it i was having 12-14 seizures a month. Now I'm down to 4-6 so cut in half and some of them I barely… read more

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