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When did you get it?
1950s
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Diagnosed 1992 I think winter. Oh wait nope summer.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.
@A MyEpilepsyTeam Member It wasn't that great when I was at school either I was diagnosed in 94 started school in 2000 and didn't officially start a support class until year 3. And even when I did… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
just wondering what yalls state laws are for driving aftwr a seizure. every time i have one, i have to wait 6 months to drive, which sucks but could be worse. i was just wondering if yall had similar laws, or for those of you who have multiple seizures, what do yall do about driving?
In south Africa you aren't allowed a license if you've been diagnosed with epilepsy. You have to be seizure free for 2 years before you are allowed to apply for a license. Personally I have a lot of… read more
My son is in the process of being tested for temporal lobe epileptic surgery. The neurologist told us it will stop the seizures. Has anyone in the group experienced this or have any positive feedback?
I had laser ablation in 2020 , the first 8 months i was seizure free, then i started to slowly get seizures again. Now i get them sometimes, mainly around my period. Or missed meds. I used to take… read more
How many people still manage to still work full time and have breakthrough seizures?
I worked 6 days a week 50/hrs wk. for 35 years. I had worked in a lumberyard. I started working outside making houseloads of lumber. Very physical labor. I moved into customer service, less physical… read more