I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
Ahh ok I was just wondering. Thank you Marilee.
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Sleeping or watching tv
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill
My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!
I have clusters of seizures that take hours to break (100-150 seizures) and i take 2-3 milligrams of Ativan to break the cluster. Anyone know if CBD would benefit me.
I use Ativan and CBD oil, it doesn’t seem to bother me at all. In my case, I definitely need both, especially if stressed or tired.
My sleep doctor put me on it because I was literally getting zero sleep for a month due to seizure activity and gabapentin making my brain feel on fire. My neurologist wants me off it because it’s “just a tranqualizer and causes memory issues”. I’ve been on .5 for a month and have slept beautifully. I don’t have an addictive personality and really would like to stay on it because im enjoying sleep, but am worried about long term.
I've taken it for 13 years.im getting weened off it(slowly) it makes me so tired
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Did anyone switch from brand name Vimpat to generic Vimpat recently now that it's available? If so, how are you feeling?
I started generic Vimpat/lacosamide a few weeks ago after 3 years on the brand name. Still trying to figure out how it's going for me. Sometimes I feel like I'm angrier than usual and felt some deja vu sensations today. Used to have those with brand Vimpat every few months though so not anything new.
I switched to generic due to insurance in February 2023. I have had a ton of issues including breakthrough seizures and weakness and lots of double vision and dizziness. My doctor just increased the… read more