Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I have a apptment with my neroligest on the 13th of July and I need to know about a medication jam totally against as am a advocate for not taking this kinda meds. I have to find a medication to replace topomax and my only option as I've researched everything is Epidiolex and am totally against it because of my advocacy and stance anyone who's on it or has a option or can provide a answer anything would be greatly appreciated. Am on onifi and briviact along with topomax now and need something to… read more
I agree, I've also been learning about myself and my condition, education has been the best medicication.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
My ex bf was 29 years when he passed away from a random sezure at the age of 29 he was born with fetal alcohol syndrome and scaring on the left side of the brain..is this something that happens and could there have been anything to prevent his premature death
He may of had a a SUDEP ( sudden unexplained death in epilepsy ) . The best thing is to talk to a specialist in this area
my new years resolution is to to be healthyer. just wondering what is your new years resolution(s)?
MarleneFerraro: thank you and good luck to you as well! i always have a list of things i'm working towards. Sometimes i dont hit the goal by the time i set it so i reevaluate and adjust what i need to… read more
Earlier today, a rain storm came through. Maybe a minute before this, something happened, rather not discuss it. Thought about brain tumors and intracranial pressure. When the barometer drops, ICP is higher than the pressure outside of the head. Had brain surgery, and brain tumors have the same effect- the tumor presses on the brain. Any experiences with sudden changes in air pressure?
Me too. Exactly my experience, every word. Even what my neurologist said to me this morning, exactly word for word. He said he had deep experience with epilepsy for many years and never heard of air… read more
My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.
@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more