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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Does Anyone Here Have Temporal Lobe Epilepsy ?
A MyEpilepsyTeam Member asked a question 💭

i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly

A MyEpilepsyTeam Member

Francis2,
I don’t blame You!

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Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

Phenobarbital
A MyEpilepsyTeam Member asked a question 💭

As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.

A MyEpilepsyTeam Member

I take 145 mg of phenobarbital.

116 at night

On it 29 years

I’m Sexually Disabled Due To The Side Effects Of My Medicine, And All Types Of Medication I’ve Tried. What’s The Best Thing That I Can Do?
A MyEpilepsyTeam Member asked a question 💭

It’s simply tough. When and if I have sex I go less than a minute. If I cannot straight up fix it up I’d like a recommendation for the best thing I can do.

A MyEpilepsyTeam Member

The best best way to get rid of a side effect your Primary Physician can help you with the side effects as well as your Neurologist, like change your medications again an again like they did with me… read more

Has Anyone Had The RNS SURGERY, Please Provide Me With Any Feedback.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Mine was like sean. I did a 14 day stay eeg one surgery , stitches. They monitored me for about 2 months then we started making adjustments. My battery change was a day surgery a lot smaller cut than… read more

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Question
A MyEpilepsyTeam Member asked a question 💭

My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.

A MyEpilepsyTeam Member

@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more

Can You Lose Your Memory Due To Seizures? My Husband Has Been Saying For A Week Now That He Doesn't Remember Much Of Anything Or Anyone?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have or had 53 nieces and nephews at one time or another but now I can only remember about 15 and that is a real strain for me just thinking about who they are?

What Are The Chances Of You Child Having Epilepsy If You Have It?
A MyEpilepsyTeam Member asked a question 💭

Me and my partner are wanting to try for a baby but im a bit apprehensive as I don't want my baby to have epilepsy. I know it can be genetic but I am the first person (we know about) to have epilepsy in my family and doctors don't know how I got it. I would just like to know the odds because I dont think I would be able to watch my baby have sezuires seeing how scared I make my mum when it happens to me.

A MyEpilepsyTeam Member

I'm 64 I've got 3 grown up children who haven't any problems.( Apparently I had a first cousin who had major seizures in her teens which stopped when she got pregnant,( it was still very taboo back in… read more

How Come Every Time I Start A New Job Within The First 1 To 3 Days I Start Having Epilepsy Activity And It Interferes With Me Working
A MyEpilepsyTeam Member asked a question 💭

How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone

A MyEpilepsyTeam Member

The stress ï now have too much in my mind. Take it one day at a time

Does Shingles Vaccination Cause Seizures.
A MyEpilepsyTeam Member asked a question 💭

My wife had a Zostavax vaccine to prevent shingles and 14 hours later had grand mal seizure that lasted 20 minutes. The T8 joint in her back collapsed during the seizure. Never had a seizure before this, has had 3 since. We believe the Zostavax bought this on, has this happened to anybody else.

A MyEpilepsyTeam Member

Thanks, my wife was 70 when this happened,I believe that the comment on Encephalitic swelling maybe correct. I asked a Doctor his thoughts and he thought that was quite likely and the swelling has… read more