have any one heard of a non invasive VNS, its a new production of Nexeon med , It was introduced 0n 23/0ct 2017
vagels nerve stimulator it a device that putted under surgery to control your seizures you tube it
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more
I'm on Vempat for the last 3 months which really controlled my seizures, away from mild twitches in my left arm and once per month partial complex which is paradise for my previse situation, recently I'm suffering from dysphagia and its progressing with aspiration of stomach fluid to my lungs witch is giving me chest infection from time to time,
I googled and their is a report from FDA saying their 2% population suffering from dysphagia, has any one suffered my situation, any advice?
I'm not in Texas anymore and am thoroughly miserable. I'm pretty much alone and overly emotional due to menopause. My seizure types are partial complex and catamenial epilepsy with a heavy side… read more
I was thinking of level in buildings where we live in, does it effect us.
I was living on ground floor and now I'm on the 17 level and think it played a part in controlling my seizures, may be being away from the street sounds, may be more clear air or even the atmospheric pressure.
any share me my opinion ?
Whatever makes you happy helps you deal with epilepsy! So
for you being above also elevates your state of mind. .
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.
I have a very bad short term memory but a good long term memory