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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Night Sweats, Unrelated To Meds Or Menopause
A MyEpilepsyTeam Member asked a question 💭

Anyone else get night sweats EVERY SINGLE NIGHT (not from medication, menopause or perimenopause) specifically from their epilepsy? I sleep with my room probably about 55° every night yet every night I wake up 10 times every evening very uncomfortable and drenched in pools of sweat.

A MyEpilepsyTeam Member

Me too. I’ve been trying my best to sleep through the night but am getting desperate…

Has Anyone's Neroligest Tol You That Low Potassium Was The Cause Of A Grand Maul?
A MyEpilepsyTeam Member asked a question 💭

My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.

A MyEpilepsyTeam Member

I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Given Or Taken Up
A MyEpilepsyTeam Member asked a question 💭

What things have forum members given up or taken up because it reduces their seizures?

A MyEpilepsyTeam Member

I agree with what everyone is saying. I'm not a big drinker besides wine coolers I always thought every time I drink I would have a seizure. I don't smoke marijuana but I did something bad and picked… read more

When You Are Taking The Medication
A MyEpilepsyTeam Member asked a question 💭

When you are asked to take medication in the Morning and Night when Label on the box, would you follow it to 12 Hours between taking it, or what would you think of Various time in the Morning and A Various time at Night? If you didn't have a set 12 Hour Period would you think people would have more Seizures, Because I use to work early at 6am up to Last February, but would take my Medication at 9pm for Night , so this would be over a 12 Hour Period.

A MyEpilepsyTeam Member

Lamictal, Frisium and Epilim Chrono

Do You Use Anything To Help You Remember Take Your Medication?
A MyEpilepsyTeam Member asked a question 💭

I have made a routine of taking my medications, however, when something disrupts that routine, I sometimes tend to forget to take my medication. How you found anything useful to help you remember take your medications?

A MyEpilepsyTeam Member

Got a pill box to lay on my table, is a weeks supply at a time! Alarms on iPad and telephone come in handy! Thanks for asking

Housing , Caseworker
A MyEpilepsyTeam Member asked a question 💭

Why isn't there housing help or caseworkers for us .and if there is you have to be 55 or 66.

A MyEpilepsyTeam Member

Yeah that right that's a shame!!!