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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Why Would Someone Have Their First Seizure At The Age Of 68? What Is Going On?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I was 58. Took 4 years to diagnose. I still believe it’s hormonal for me. I am followed by Mayo and they have no real answers. I’m refractory (drug resistant). Just woke up with it one day. 🤷‍♀️

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

I’m Only 18 But This Has Been On My Mind
A MyEpilepsyTeam Member asked a question 💭

Those with epilepsy that had children what was your experience like? Did you have to be off your meds? Was it scary? I know I still have lots of time to worry and decide if I even want a family and Ik I can have the conversation with my doctor when the time comes but share your stories

A MyEpilepsyTeam Member

Meds for epilepsy are one of the safest for pregnancy. My son had severe cleft lip & palate cause 40 years ago there weren't. Read my story to see how I know so much bout this. During my pregnancy had… read more

Can Convulsive Seizures Cause Long Term Skeletal Damage?
A MyEpilepsyTeam Member asked a question 💭

Summer of 2002 is when I had my worst seizure that led to my epilepsy diagnosis and becoming medicated long term. It was a fully convulsive seizure almost for a full 20+ minutes. Can a seizure of that magnitude cause long term bone structure damage? Now that I'm in my mid-50's a lot of shoulder and neck issues that just seem to linger and sometimes not much relief for. I still get random muscle jerking of my legs, mostly the right leg, and sometimes more rarely even a bit with the torso.

A MyEpilepsyTeam Member

A seizure that lasts that long is what happened to me 2 in 1 and a half hour. They can be dangerous .

Can My Son Have Seizures
A MyEpilepsyTeam Member asked a question 💭

I had serzuire since I was 2 yrs old and I am 31 yrs old and my son is 10 yrs old just wondering if he would have them or if would get them from me

A MyEpilepsyTeam Member

I was wrong in my original comment, you can pass epilepsy through genetics. Although just because you have epilepsy doesn’t necessarily mean that it was passed on through genetics

Anyone Feel Defeated When They Have To Adjust Meds And Can't Drive?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No. I did lose the ability to drive b/c of complex partial seizures (new term used today after 2017 reclassification but you know what I mean) for about 3 yrs. But I'm driving again. So keep the… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Memory
A MyEpilepsyTeam Member asked a question 💭

I know that with one of the 4 epilepsy you have in the brain it shows memory loss, but do you think Medication for Epilepsy would have effect on your Memory other then with the one of the epilepsy which you have?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member ,

I to also blame seizures. Both medications and seizures share a piece with memory issues

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age