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I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
I had to have 2 EEGs. First one was an inpaitent EEG for 3days went no where and the hospital staff and doctors were rude as hell to me
Second on was at a diffrent hospital for only an hour and they got excatly what they needed shortly after that i was diagnosed with FLE and TLE epilepsy was put on keppra and then topamax but had to come off of those and currently on Lamictal. My offical diagnosis is Primary Generalized Epilepsy
I recall having like 3 or 4 absence seizures in a row every few… read more
I honestly don't know because at the end of my first appointment, my neurologist had me hooked up to an ambulatory EEG for 48 hours, thus I do not know at what time during that period the ambulatory… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
It tends to affect most of my personal life. It's quite embarrassing at times, working with a colleague for 3 years and all of a sudden you can't remember something like names. Going to your boss to ask or tell them or tell them something and just stand there because you don't remember. It's frustrating not to mention annoying.
I have a terrible memory. I do remember staying up late studying for exams etc. when I was in school for hours. I would read a chapter in a book then an hour later all that information did not sink… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more