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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Xcopri
A MyEpilepsyTeam Member asked a question 💭

Has anyone put on xcopri and seen reduction in seisures ?

What are your thoughs of RNS and epilepsy surgery, are worth the pain?

A MyEpilepsyTeam Member

Know this is an older post. Xcopri has helped slow my seizures but side effects are brutal. Loss of balance and coordination at higher doses. Slowly weaned off to a much lower dose and still have… read more

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Dose Anybody Know If Epilepsy Is Hereditary Please. Thanks
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I don't know. My Father's Father died when My Dad was only 7 years old. Never knew much about Him.

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

Hum I wonder if addiction is on that list of side effects? Or the term dependency? I'm just curious. Seems that side effect gets missed sometimes.

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Vertigo
A MyEpilepsyTeam Member asked a question 💭

Does anyone else have problems with Vertigo, on Keppra and been 21 months seizure free and praying it continues like this xx

A MyEpilepsyTeam Member

I have experienced vertigo both on and off meds. I've never experienced it when up and walking around. Both have had it multiple times while sitting down. The room starts to spin so badly that I… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Does Anyones Faith Carry Them When Everything Else Is Bleak
A MyEpilepsyTeam Member asked a question 💭

Please I need some inspirational stories I love em they fuel me

A MyEpilepsyTeam Member

God would never put anything on your back that you couldn’t carry! So as Francis2 said show that happy love from God when you have something hard,(that Jesus can help you with) to others. You never… read more

Topamax
A MyEpilepsyTeam Member asked a question 💭

Does anyone know when side-effects of topamax will ware off once you stop taking them? I've been taking them from the age of 10-21. Now I've been off for 2 months

A MyEpilepsyTeam Member

The medication should be out of your system by now.